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Aug 23, 2022

Emergency! Out of Stoma Bags - Need Help ASAP!

This topic is about a person who recently had a stoma revision, which resulted in a larger stoma. Unfortunately, this change means their current ostomy bags no longer fit, and they are running out of supplies. They are in a small town with limited access to resources and are seeking advice on how to handle this situation. Here are some suggestions and insights shared by others who have faced similar challenges:

1. Consider ordering online with overnight or two-day delivery. Major web suppliers or Amazon might have inexpensive imported one-piece pouches that can be used in emergencies. Many medical-supply companies offer next-day shipping if you order before noon.

2. Call the customer service lines of manufacturers like Hollister, Coloplast, or ConvaTec to request expedited or sample shipments. Some people have had success with this approach, even though the original poster did not.

3. Contact your health insurance provider to get a list of in-network suppliers that might be closer or more responsive.

4. Check with independent local pharmacies and medical-equipment shops, as they might have limited ostomy supplies in stock.

5. If absolutely necessary, consider reusing or improvising with your current supplies. For example, if you use a two-piece system, you can detach and clean the pouch for short-term reuse. As a last resort, you might cut away the inner barrier and attach it to another base using double-sided tape.

6. Build and store an emergency buffer by keeping at least a two-week surplus of barriers, pouches, rings, and other supplies. You can purchase extras through eBay, where estate sales often list inexpensive unopened supplies. Keep a small cache of low-cost import bags from Amazon or eBay specifically for emergencies.

7. Seek peer support. Community members have offered to mail pre-cut one-piece bags and sealing rings. Sharing your sizes and needs can help others assist you quickly.

8. Request free samples from major manufacturers like Hollister, Coloplast, and ConvaTec, as they often provide generous trial kits to potential new users.

9. Explore emergency-supply charities and sites such as Ostomy211.org, which requires a $30 donation and ships once weekly, or the Mayo Clinic Store for mail-order ostomy supplies.

10. Consider publicly sharing poor customer-service experiences on company social-media pages to encourage faster action.

11. Evaluate alternate insurers or supply distributors. Some people have reported excellent and flexible service from companies like Blue Cross Blue Shield Federal, which works with local suppliers.

12. Keep all emergency items, such as bags, barriers, and accessories, with other disaster gear like candles and water for readiness.

13. For DIY contingencies, some members suggest experimenting with makeshift pouches, such as duct-taped Zip-Lock bags, and request instructional videos for guidance.
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