This topic is about someone who has been living with a temporary ileostomy for 11 years and is now considering a surgery known as a proctectomy, or "Barbie-butt" surgery. This procedure involves closing the anus and removing rectal tissue. The person is concerned about the potential for disfigurement, impact on sexual function, and increased pain. They are seeking recommendations for skilled surgeons and reliable information about the surgery.
Here are some helpful insights and advice shared by others:
1. Cosmetic outcome: Many people have found that the surgery is not visibly disfiguring. After the procedure, the buttocks are stitched together, leaving a shallow indent that still looks like a normal cleft.
2. Surgeon and center recommendations:
- The University of Nebraska Medical Center is noted for excellent results, though a specific surgeon is not named.
- Dr. Joel Goldberg at Brigham and Women’s Hospital in Boston, MA, is recommended as an outstanding colorectal surgeon.
3. Peer experience: One person shared that they had a constricted stoma that prevented scoping. After having the stoma resected and relocated from the right to the left abdomen, blockages were eliminated. They had their anus removed over 30 years ago without major issues, indicating that long-term success is possible.
4. Communication tip: It is suggested to bring a written list of concerns, such as appearance, sexual function, and pain, to any prospective surgeon. This ensures that they fully understand and can address your goals.
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