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Dec 12, 2022

Sigmoidoscopy Through Stoma - Seeking Advice

This topic is about the experience and safety of undergoing a sigmoidoscopy through an ileostomy stoma. The person sharing their story has had an ileostomy for nearly 50 years without issues but recently started experiencing pain near the stoma. After consulting with several doctors, a sigmoidoscopy and an upper endoscopy were recommended to investigate further. Here are some insights and advice shared by others who have been through similar procedures:

1. **General Safety and Discomfort**
- Many people have had multiple sigmoidoscopies or colonoscopies through their stoma without any damage. The procedure is generally safe and painless.
- The main sensations during the procedure are temporary pressure or gas due to air being introduced into the intestine. Some bloating afterward is common, especially if done without sedation.
- Being fully sedated, particularly when combined with an upper endoscopy, can eliminate discomfort. Most people find waking up groggy and gassy to be the most uncomfortable part.

2. **Sedation Choices**
- Some choose to have the procedure without anesthesia to avoid recovery time and costs, experiencing only mild discomfort.
- Others prefer light or full anesthesia, especially if another procedure, like esophageal dilation, is being done at the same time.

3. **Diagnostic Value vs. Alternative Imaging**
- Scoping provides real-time visualization and the ability to take biopsies, often at a lower cost than CT or MRI scans. It is useful for detecting inflammation, strictures, polyps, and disease activity such as Crohn’s.
- While some question the need for scoping if pain seems unrelated to intestinal issues, it is considered justified when other imaging does not provide answers.

4. **Frequency of Follow-up Scopes**
- Routine preventive scopes are typically done every five years, but the frequency may increase for monitoring conditions like Crohn’s, strictures, or before an ileostomy reversal.

5. **Post-scope Management**
- If inflammation is found, treatment options may include biologics like Entyvio (vedolizumab) or antibiotics.
- Rifaximin, known as Xifaxan, is a common antibiotic for treating Small Intestinal Bacterial Overgrowth (SIBO), though it is noted to be expensive.

6. **Insurance and Financial Considerations**
- Medicare and a supplemental plan can cover the entire cost of a sigmoidoscopy and upper endoscopy.

7. **Reassurance**
- It is normal to feel anxious before your first stoma scope, but many people report no changes to stoma size, no bleeding, or need for surgical revision afterward.
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