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41,403 members
Jan 18, 2023

Reversal Challenges with a Shortened Small Bowel

This topic is about someone who has a temporary ileostomy and was planning to have it reversed. However, during a recent surgery, more of their small bowel had to be removed, making it difficult for the remaining bowel to connect to the rectal stump. The surgeon is now unsure if a reversal is possible. The person is reaching out to see if others have experienced something similar and what their outcomes were.

Here are some insights and advice shared by others:

1. Technical limits:
- Reversing an ileostomy becomes much less likely if part of the small intestine is removed. Some surgeons might still discuss the possibility to keep hope alive.
- One person shared that their surgeon deemed reversal impossible when only 3½ feet (about 1 meter) of small intestine was left.

2. Risk–benefit discussion:
- Even with a complete small bowel, reversals can lead to issues like frequent bowel movements, leakage, dehydration, malnutrition, and repeated hospital visits. Losing more of the small bowel increases these risks.
- It's important to have thorough discussions with the surgical team about what to realistically expect compared to living with a permanent ostomy.

3. Quality-of-life perspectives:
- Some people choose to keep their ileostomies even if a reversal is possible because they believe their quality of life would be better with the stoma.
- While initial feelings of devastation are common, many people adjust over time. An ostomy can bring back independence and allow for normal activities like working, traveling, and visiting family.
- Practical tips include always knowing where the nearest bathroom is and being prepared for occasional pouch accidents.

4. Emotional adjustment and support:
- Acceptance often follows a process that many ostomates experience: initial shock, gradual adaptation, and eventual normalization.
- Peer communities offer ongoing support, tips, and reassurance that life can still be full and active.
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