Balancing life with an ileostomy can be quite a journey, especially when dealing with fatigue and considering whether to remove the rectal stump. Here's a look at some of the experiences and advice shared by others who have been through similar situations:

- One year after ileostomy surgery for ulcerative colitis, some people still face active UC in the rectal stump and may need another operation. This can be a tough decision, especially when considering the potential benefits and risks of removing the rectal stump.

- Fatigue and low energy levels can be unexpected challenges. Even with normal blood work, some people find their energy hasn't bounced back as they hoped after surgery.

- Living with an ostomy appliance 24/7 can be frustrating at times, and it's common to wonder if others feel the same way.

- Concerns about rectal stump removal include stories of poor healing or ongoing drainage. People are looking for both positive and negative real-life outcomes to help make informed decisions.

- Surgery has been postponed for now, with plans to discuss additional treatments for rectal UC in the new year. Meanwhile, there's an exciting anniversary trip to Hawaii planned, with hopes of snorkeling with the ileostomy.

Here are some insights and advice from others:

1. Rectal stump removal has its pros and cons:
- Some people experience complete relief from symptoms like pain and bleeding after removal, calling it the best decision they ever made.
- Others warn of complications such as non-healing wounds, mucus drainage, and prolonged pain.
- Healing experiences vary widely; some recover quickly, while others face long-term challenges.

2. Post-surgical wound care tips:
- Sitting on hard surfaces can be difficult initially; using cushions and topical anesthetics can help.
- Daily salt baths can keep the incision clean and reduce infection risk.
- For wounds that tunnel and drain, some have found relief by flushing the area with a water and hydrogen peroxide mix and keeping the area shaved.

3. Monitoring health after colectomy:
- Without a colon, it's important to stay hydrated and consider liquid vitamins.
- Regular blood work, at least every six months, can help catch deficiencies or unrelated conditions early.

4. Lifestyle and emotional adjustment:
- Many people with ileostomies lead active lives, enjoying activities like snorkeling, skiing, and more.
- A positive mindset, humor, and support from peers can help when feeling down or experiencing "bag fatigue."

5. Hyperbaric oxygen therapy (HBOT):
- Some use HBOT to improve healing of tissues and fistulas, with doctors believing it can speed up post-op recovery.

6. Miscellaneous pointers:
- Alcohol can count toward fluid intake, but extra water is still needed.
- Recovery times vary; some feel stronger quickly, while others take over a year to regain their stamina.