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41,459 members
Jan 02, 2012

My Journey to Becoming an Ostomate

This topic is about the long-term complications someone experienced after having surgery to remove part of their sigmoid colon and create a colostomy. The journey began with recurrent diverticulitis, a condition where small, bulging pouches in the digestive tract become inflamed or infected. Due to other health issues like diabetes and angina, surgery was initially considered too risky. However, a second opinion led to a decision to proceed with surgery.

Here’s a timeline and some key points from the experience:

1. In January 2009, a severe diverticulitis attack almost required emergency surgery, but it was managed with antibiotics and a liquid diet.

2. On March 3, 2009, the patient was scheduled for laparoscopic surgery, but due to angina risks, the procedure was changed to an open surgery.

3. Post-surgery complications included:
- Respiratory failure requiring CPAP for 24 hours.
- Infection and severe odor from the surgical wound, which was treated with vacuum dressings.
- An anastomotic leak led to an emergency re-operation and the creation of a colostomy.
- A MRSA infection resulted in a three-month hospital stay, with a large open abdominal wound managed by a portable negative-pressure pump for five months.
- A persistent pelvic abscess required daily irrigation and caused bladder pressure and reduced kidney function, leading to multiple hospital admissions for drainage.
- Two parastomal hernias added to the pain.

4. Three years later, the patient is awaiting a combined colorectal and plastic surgery to address the abscess, remove the rectal stump and anus, and use a muscle flap from the upper leg to fill the cavity.

5. The patient is on ongoing medications, including Oxycodone, Tramadol, Oxynorm liquid, and Sativex spray, to manage significant pain and daily abscess drainage while preparing for further surgery.

Advice and insights from others include:

- Emotional and community support is crucial. Many emphasize that the forum offers understanding, strength, and encouragement, reminding the patient they are not alone.

- One member shared their experience with a "final chop" surgery, which involves removing the rectal stump and anus. This procedure resolved many ongoing issues and improved their quality of life and pain management.

- Long-term opioid use can be challenging, but with proper adjustments, it can lead to a more productive life.

- The resilience of ostomates is recognized, and the patient is encouraged to draw upon this strength while facing upcoming surgery.
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