This topic is about dealing with depression after having an ileostomy, experiencing damage from radiation, and facing the possibility of needing to self-catheterize in the future. The person sharing their story is trying to stay positive but finds the thought of more medical procedures overwhelming.
Here are some insights and advice shared by others:
- The person is experiencing family stress as their adult daughter, son-in-law, and grandchildren live with them, causing constant conflict. They hope for stability once the family moves out, which would help them and their two younger children, aged 14 and 11.
- They are also dealing with an ostomy-care issue, specifically persistent wafer leakage, despite applying it correctly. An ostomy nurse confirmed the technique was correct and suggested trying a different tape. A follow-up appointment with a doctor is planned.
- Maintaining a positive outlook and relying on faith or prayer is seen as crucial by several people, who believe that being alive is a blessing.
- Acceptance and adaptation are important. Making the most of life within new constraints and focusing on what can be controlled can lead to significant benefits.
- Inspirational reading can help build resilience. One book recommended is "David and Goliath" by Malcolm Gladwell, which discusses how disadvantages can become advantages.
- For those worried about future self-catheterization, one person who has been self-catheterizing for five years reassures that it is not as bad as people think. They mention a product called SpeediCath catheter, which is discreet and easy to use.
- Emotional support can come from friends, pets, home-health services, and online communities. Remember that setbacks are temporary, and it's important to lean on a support network.
- To manage wafer leakage, trying different accessory tapes or products is suggested, along with continued follow-up with the ostomy nurse and physician.
- For dealing with depression and anxiety, both medical and therapeutic options are available. Psychologists offer talk therapy, while psychiatrists can prescribe medication. Confidentiality is maintained except in cases of risk of harm to oneself or others.
- One person shares that low-dose amitriptyline (10–20 mg) helped improve sleep, appetite, and reduce anxiety, with initial grogginess subsiding after a few weeks.
- Therapy is described as "guided reflection," and some prefer it over medication. Another person shares their experience of being hospitalized for GI bleeding and the emotional toll it took, emphasizing the importance of taking things one day at a time and using calming medication when necessary.
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