This topic is about someone who has just returned home after having an ileostomy surgery, which they affectionately call "Squidge." They are adjusting to life with their new stoma and are experiencing some early challenges and victories. Here are some insights and advice shared in the discussion:
- The person is five days post-operation and is spending their first night at home. Although the stoma is placed higher than expected due to previous scars, they are relieved to be free from the severe bowel pain they had before surgery. Adjusting clothing is necessary, but they feel it's a worthwhile trade-off. Energy levels are low, but they are in good spirits, especially being reunited with their children.
- On day six, they noticed red, sore, and stinging skin around the stoma. They are looking for something to apply that won't affect the pouch's adhesion. A nurse visit is scheduled to resize the pouch opening, and they have been given Orahesive powder, which has helped ease the sting.
- They are interested in trying two-piece appliances in the future but have been advised to stick with a one-piece for now. They are also considering using barrier wipes and are curious if they help.
- They are wondering when it will be safe to return to activities like gym workouts or Thai-boxing. They are concerned about the risk of hernia or prolapse and are considering using an "ostomy armor guard." A surgical follow-up is scheduled for April, where they plan to discuss these questions.
Here are some pieces of advice and insights shared:
1. Clothing & Confidence
- Stomas placed higher can still be dressed around with creative wardrobe choices. Staying positive helps with the adjustment.
2. Managing Early Skin Irritation
- Redness is common while the stoma is still swollen. It's important to have the stoma diameter re-measured and cut the wafer opening accordingly.
- Avoid creams or ointments that might interfere with adhesion. Instead, use stomahesive or Orahesive powder to absorb moisture and protect the skin.
- Barrier wipes can add a protective film and reduce soreness. It's a good idea to request samples from the stoma or IBD nurse.
- Minor leaks often settle once swelling subsides and the fit improves.
3. Appliance Choices
- Many nurses start patients on one-piece pouches. Switching to a two-piece system later can reduce skin disturbance during changes and may feel more comfortable for some users.
4. Exercise & Lifting
- Abdominal muscles need time to heal. Members report:
- Light functional lifting or transfer work after roughly 3–6 months, with medical clearance.
- Gentle gym return, like cycling or very light weights, at about 4 months, increasing slowly.
- Contact sports are possible with caution. Protective gear such as "Ostomy Armor" or other stoma guards exists, but some athletes ultimately play without it. Always confirm readiness with the surgeon and build core strength gradually to minimize hernia risk.
5. Long-Term Outlook
- Early leaks and anxiety are normal. Most people find that the routine settles within weeks, and energy levels often surpass pre-surgery levels, enabling a return to work and hobbies.
Products mentioned include ConvaTec Stomahesive/Orahesive powder, two-piece vs. one-piece pouching systems, and Ostomy Armor Guard protective cover.
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