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Nov 18, 2022

We are the different

Living with an ostomy can bring about a mix of emotions, from feeling different to finding acceptance. The topic revolves around the experience of having an ostomy pouch, which is often invisible to others but can make those who have it feel self-conscious or worried about judgment. The conversation invites others with ostomies to share their feelings and experiences.

Here are some insights and advice shared by others:

1. Mind-set & Self-image
- Consider the ostomy as a life-saving change; being alive is more important than any cosmetic concerns.
- Feeling "whole" is subjective; if someone reacts negatively, they may not be worth your time.
- Use humor or positive thinking to shift your perspective, like creating an acronym such as "With Having Ostomy Life still Exists."
- Remember, everyone has their differences; an ostomy is just one of many variations.

2. Openness vs. Privacy
- Most people won't notice the pouch, so share your situation only when it feels necessary.
- Some choose to be completely open, even showing their stoma to educate others or promote health screenings.
- In close relationships, honesty often leads to acceptance, with many partners seeing the pouch as a sign of survival.

3. Dealing with Public Situations
- At airport security, a polite explanation about the ostomy usually suffices, as agents are better trained now.
- At beaches or pools, wearing the pouch openly can help normalize it and ease personal anxiety.
- Use humor in everyday situations, like when a cashier asks, "Do you need a bag?"

4. Practical Living Tips
- Keep your supplies organized and maintain a healthy diet to reduce complications.
- In the summer, wear breathable clothing to manage the heat and expect some sweat, knowing it's temporary.
- Enjoy small perks, like not worrying about toilet-paper shortages.

The originator of the discussion shared that it took seven years to feel comfortable with the pouch. They humorously mentioned considering putting ice in the bag during hot weather and appreciated the support and light-hearted teasing from their family.
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