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Mar 16, 2023

Seeking Advice on Illeostomy Reversal Process

This topic is about someone who recently had an ileostomy due to diverticulitis and is now waiting for the results of a test to see if they can have the ileostomy reversed. They are also dealing with some pain after a recent medical procedure and are navigating the challenges of the healthcare system. Here are some helpful insights and advice for anyone in a similar situation:

- Four months ago, the person had an emergency ileostomy after part of their colon was removed. The stoma was created to allow the colon to heal.
- They recently had a Gastrografin enema to check if the colon is ready for reversal.
- Since the enema, they have experienced pain on the left side, similar to what they felt after surgery, and have noticed leakage of the contrast medium.
- The radiologist did not discuss the results, saying the surgeon would review them.
- There is conflicting information from stoma nurses about how the results will be communicated and the process for scheduling the reversal.
- The person is worried about waiting a long time for the reversal and feels uncertain about the next steps.

Here are some pieces of advice and insights:

1. Getting your results:
- Contact the office of the doctor who ordered the test, as they are responsible for providing the results. Radiology staff typically do not release findings directly.
- Radiology reports are usually sent to the referring doctor within 24 hours. Keep calling the secretary to get a copy.

2. When to seek urgent care:
- If the pain returns or worsens, trust your instincts and visit A&E/ER. Persistent or increasing pain after a procedure should be checked.
- Hospitals generally discharge patients only if there is no immediate danger, but new or severe symptoms should be reviewed.

3. Understanding radiology interpretations:
- Radiologists provide an imaging report, but your surgeon will consider it along with your overall health.
- Different specialists may interpret scans differently, but the final decision is made by your treating surgeon.

4. Post-enema discomfort:
- It is common to experience mild, temporary pain after a Gastrografin or barium enema, which usually subsides within a day or two.

5. Navigating NHS waiting lists:
- Long waits for elective reversal are common, sometimes up to two years. If private surgery is not an option, regularly check in with your surgeon’s office and stoma team to stay informed and on their radar.
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