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Mar 23, 2023

Reversal to Ileostomy - Seeking Recovery Advice

This topic is about a parent seeking advice and support for their 7-year-old child who has undergone multiple surgeries due to complications from chemotherapy. The child has had a series of operations related to their ileostomy, and the family is considering reinstating the ileostomy after a failed reversal. They are looking for insights on recovery time, potential risks, and what to expect moving forward.

Here are some helpful points and advice shared by others:

1. **Nutrition Support**: It's important to discuss with the surgeons the possibility of using Total Parenteral Nutrition (TPN) through an IV or PICC line. This can help provide necessary nutrients while the bowel is resting. Also, inquire if continuing antibiotics is advisable to support healing, especially if the bowel is slow to start functioning again.

2. **Bowel Recovery Expectations**: After abdominal surgery, there is about a 50/50 chance that the bowel will start working quickly. In adults, a post-operative ileus, where the bowel is slow to wake up, can last 7-10 days and might require an NG tube to prevent vomiting. Pediatric cases might differ, so it's crucial to discuss specific expectations with the surgical team.

3. **Hospital Management**: Standard hospital practices include using an NG tube for drainage and delaying oral intake. These measures help protect the surgical site and reduce nausea until normal bowel movements return.

4. **Seeking a Second Opinion**: Consider asking for a referral within the NHS or a private consultation with specialists at Cleveland Clinic London. They might offer additional expertise in pediatric colorectal issues and could work alongside the current medical team.

5. **Finding Inspiration and Support**: Look for stories of others who have been through similar experiences. One suggestion is to watch the video "We Are Care Managers – Paula Erwin Toth – Nurse Story" for a success story from a former pediatric ostomate. This could provide both hope and practical coping strategies for the family.
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