This topic is about a person who has been using Hollister urostomy pouches after undergoing bladder cancer surgery. Recently, they noticed a decline in the quality of these pouches, which led to leaks and skin irritation. They reached out to both their supplier, Edgepark, and Hollister for help. Here are some helpful insights and advice shared by others:
1. If you're experiencing issues with your current urostomy pouches, consider requesting free samples from other manufacturers. This allows you to compare how different products fit and how long they last. It's a good idea to test them on a day when you're active, so you can manage any potential leaks.
2. Some alternative pouch brands that are often recommended include:
- Coloplast Sensura Mio Click 2-piece system, which users say offers a 3-4 day wear time and is comfortable for the skin.
- Coloplast USA has a customer service line at 1-866-293-6349, known for being responsive and helpful.
3. If your current supplier, like Edgepark, is not providing the support you need or has back-ordered items, consider trying other distributors such as:
- Byram Healthcare
- Comfort Medical
- It's suggested to avoid Prism based on a negative experience shared by a user.
4. When considering a switch to a new distributor, it's important to:
- Call them first to ensure they accept your insurance.
- Ask if they stock your current product or if they can provide alternatives and samples.
5. If you prefer to stick with your current pouches but notice inconsistent quality, continue to escalate the issue directly with Hollister. They have been known to replace defective lots quickly without involving insurance.
6. Remember, you shouldn't have to struggle to get the essential supplies you need. If necessary, persist with the manufacturer or consider switching suppliers.
7. For those experiencing nighttime "vacuuming" issues, where the bag flattens and leaks, try keeping some fluid in both the body pouch and the bedside drainage bag to reduce negative pressure. This tip was shared by another member, though a detailed solution hasn't been provided yet.
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