Two years ago I had to have my bladder removed due to bladder cancer.... I have always used Hollister Urostomy Bags. Has anyone noticed a decline in the quality of the bags....they seem much thinner and don't seem to seal as well. I receive a three-month supply at a time. Once, I received my three-month supply and the quality was terrible...I tried one bag from each box and they were all awful...I could only get about 8 hrs use from a bag before the seal started leaking...Edgepark, which is my supplier, was absolutely no help, so I called Hollister myself and raised cane and they overnighted me a three-month supply without getting my insurance involved....but yet they totally denied sacrificing the quality of their products and I stood firm with them saying they absolutely did, but I will admit Hollister made it right, but Edgepark was absolutely no help, I was tearing the skin around my stoma because I was having to change my bag daily or I would start leaking. I'm just curious if anyone else may have encountered a similar issue.
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Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
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