Topic Explanation:
The original poster has had a colostomy since birth due to Hirschsprung's disease, and recently noticed it started to retract and pull away from the skin. After consulting with a colorectal surgeon, it seems that surgery is the only option after previous products used were unsuccessful. The poster is seeking experiences and advice from others who have undergone similar refashion surgeries.
Advice and Insights:
- Several users shared their experiences with ostomy revision surgeries, including resection surgeries due to stoma shrinking and scar tissue causing blockages.
- One user mentioned having multiple surgeries to create a colostomy, eventually leading to an ileostomy, and undergoing a total of eight revisions in the first year.
- Another user shared their experience with Hirschsprung's disease, multiple surgeries, and the challenges they faced, including staying in the hospital and dealing with complications.
- A user emphasized the importance of finding the right ostomy products that fit well, mentioning the effectiveness of Coloplast products for a rounder belly and the use of spray glue and rings for better sealing.
- Support and encouragement were offered by users, highlighting the importance of finding a new normal and providing ongoing support for each other during the recovery process.
Conclusion:
The forum discussion provided valuable insights and experiences related to colostomy refashion surgeries, offering support and practical advice for managing ostomy challenges.
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