Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
40,891 members
Apr 20, 2023

Colostomy Refashion Surgery Experiences?

Topic Explanation:
The original poster has had a colostomy since birth due to Hirschsprung's disease, and recently noticed it started to retract and pull away from the skin. After consulting with a colorectal surgeon, it seems that surgery is the only option after previous products used were unsuccessful. The poster is seeking experiences and advice from others who have undergone similar refashion surgeries.

Advice and Insights:
- Several users shared their experiences with ostomy revision surgeries, including resection surgeries due to stoma shrinking and scar tissue causing blockages.
- One user mentioned having multiple surgeries to create a colostomy, eventually leading to an ileostomy, and undergoing a total of eight revisions in the first year.
- Another user shared their experience with Hirschsprung's disease, multiple surgeries, and the challenges they faced, including staying in the hospital and dealing with complications.
- A user emphasized the importance of finding the right ostomy products that fit well, mentioning the effectiveness of Coloplast products for a rounder belly and the use of spray glue and rings for better sealing.
- Support and encouragement were offered by users, highlighting the importance of finding a new normal and providing ongoing support for each other during the recovery process.

Conclusion:
The forum discussion provided valuable insights and experiences related to colostomy refashion surgeries, offering support and practical advice for managing ostomy challenges.
See full discusison
Gray Logo for MeetAnOstoMate
Why Join MeetAnOstoMate?

This is a remarkable community of 40,891 members.

You will get real advice from fellow ostomates who truly understand you - things you won't find in the books.

And it's not all about ostomy - there is friendship and relationships too.

Privacy is very important - your profile is not visible to the outside world.

Join Us

Popular Topics

Advice Needed for First Holiday with Toddler
LIFE IS BUT A DREAM
Best Time of Day for Planned Ileostomy Bag Change?
Wafer Leakage Issue: Stain on Outer Edge and Dark Green Color
Hello I am meloni
It" Happens
Improving Sore Skin Around Inverted Stoma: Tips and Experiences
Update from kerry
Tramadol's Impact on Appetite and Eating with Crohn's Disease
Pre op tomorrow

New Topics

MY NORMAL
The worst thing……
trophy hunters, you're fired
Reporting Issues with Ostomy Products: Why It's Important
Mastisol Experience: Keeping the Bag On but Not Perfect
Checking out this site
Deciding on Ileostomy Reversal: Seeking Advice and Experiences
Concerns About Black-Edged Stool and Digestive Health
Solved My Swimming Paranoia
Canadian Disability Tax Credit for Irreversible Stoma
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and the Google Privacy Policy and Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Join
Currently Online: 38  
↑