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Apr 24, 2023

Making friends with an ileostomy

Topic Explanation:
The discussion centers around the challenges of socializing and making friends while living with an ileostomy. The original poster has had an ileostomy for over seven years and experiences anxiety in social situations due to concerns about the ostomy bag making noises and having a high output. This anxiety has led to social isolation, and the poster is seeking advice and support from others who have faced similar situations.

Advice and Insights:

1. **Dietary Adjustments**:
- Avoid foods and drinks that cause gas and noise, such as sugar, carbonated drinks, beans, lentils, certain cheeses, and milk that is not lactose-free.
- Unsweetened plain yogurt can help reduce gas and odor.
- Consider changing your eating habits to manage high output and noise.

2. **Managing Noise and Anxiety**:
- Use humor to deflect attention from noises, such as joking about needing breakfast.
- Carry a towel or use a sweater/jacket to muffle sounds.
- Be open about having an ostomy with friends and colleagues to reduce anxiety.
- Consider using products like Devrom pills to reduce noise and odor.

3. **Social Strategies**:
- Educate friends and new acquaintances about your condition to reduce stigma and embarrassment.
- Organize a night out with friends to openly discuss your stoma.
- Be honest with colleagues about the need for longer bathroom breaks or potential noises.

4. **Mental and Emotional Coping**:
- Focus on the positive aspects of life post-surgery, such as improved health.
- Develop a mindset that does not let the ostomy control your life.
- Consider therapy or meditation to help with anxiety and self-acceptance.
- Remember that most concerns about what others think are often unfounded.

5. **Practical Tips**:
- Use a hernia support belt to help with noise and support the pouch.
- Rest hands over the stoma to muffle sounds in quiet environments.
- Take extra supplies when going out to manage unexpected situations.

6. **Community and Support**:
- Engage with other ostomates for shared experiences and support.
- Reading about others' experiences can help reduce feelings of isolation.
- Consider attending webinars or support groups to connect with others in similar situations.
See full discusison
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