Living with an unconnected J-pouch can be a unique and sometimes challenging experience. A J-pouch is typically created during surgery to help people who have had their colon removed, but sometimes it remains unconnected due to complications like fistulas. This means that instead of using the J-pouch, a person might continue to live with an ileostomy, where waste exits the body through an opening in the abdomen. Here are some insights and advice from others who have been in similar situations:

1. It's not unusual for a J-pouch to remain unconnected or to be disconnected later if complications such as infections, fistulas, or poor function occur.

2. Some people choose to keep the J-pouch in place even if it's not being used, while others decide to have it surgically removed if the problems become too severe.

3. Many who have opted for a permanent ileostomy after experiencing issues with their J-pouch report positive experiences. They often mention having less pain, fewer complications, and an overall better quality of life, with some even saying it was the best decision they ever made and expressing satisfaction with their stoma.