Hello, I had a J-pouch created in February of 2016. I had a fistula, which we knew about before the surgery, but the doctor thought he could repair it after the J-pouch surgery. I had the surgery to fix the fistula, but it didn't work. Long story short, I still have my loop ileostomy and the J-pouch is not connected. Is there anyone else out there who never connected your J-pouch?
Jmw101
May 07, 2023 11:55 pm
Axl
May 08, 2023 12:41 am
Hello
I have a pouch but had it disconnected as it was a disaster. It's still there. I also knew a woman who had it created but never connected, so yes, that is the answer to your question.
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Posted by: iMacG5
About seven years ago, just about every aspect of my life was ostomy related. From the moment I was told an ostomy might be needed until some months down the road I existed as a person afflicted with a colostomy. I feared someone other than my immediate family might find out I had a bag. Ugh! What could be worse? Suppose it filled real fast when I was out with no place to hide and take care of myself. God forbid should it leak in church! Suppose I roll over on it in bed. I was a lesser creature, destined to a life of emotional anguish and physical routines different from most of the rest of the world. I felt like a freak. Then I found folks like you guys here, read your stuff, really “listened” to what you had to say and I began looking at things differently. We know perception is everything and I began to understand how good things were relative to what they could’ve been. So many folks had it so much worse than I did. That didn’t make my discomfort go away but it exposed how fortunate I was to be dealing with my stuff and not their’s. I felt a little guilt, maybe selfishness but quickly forgave myself by understanding I just wasn’t smart enough to fix my feelings. Then, I wonder what smarts have to do with feelings. My perception was warped so my perspective toward my existence was warped.
I learned over the last few years with the help of lots of folks right here at MAO that I could be better at living just by accepting some facts. It is what it is and so what? It’s not the worst thing to happen to a person.
I think everything is, in some way, related to everything else. I just put the ostomy thing in the back seat and drive forward.
Respectfully,
Mike
Ben38
May 08, 2023 8:41 am
Yes, it's a long, drawn-out story why I had a J-pouch, so I won't go there, lol. But yes, I had a non-functioning J-pouch; it failed from the start. It had a very bad infection, and I developed desmoid tumors on my small bowel due to the condition I had my colon removed for, so it was just doomed to fail on me. My J-pouch had to be removed because of the infection.
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