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40,886 members
May 18, 2011

Need advice on having both ileostomy and urostomy - any experiences?

Topic Explanation
Suzy is seeking advice from individuals who have experience with having both an ileostomy and a urostomy, as she has been diagnosed with recurrent bowel cancer and may have to undergo this procedure.

Advice and Insights
- Having two pouches takes some getting used to, but it becomes the "new normal" after a while.
- Members of associations who have 1, 2, or even 3 stomas manage fine after a while.
- It's worth it to have the operation to remove everything if offered.
- Double bags work similarly to single bags, just takes a little longer.
- Using different manufacturers for pouches can help with leaks.
- Finding the right products and system that works for you is important.
- It's essential to give plenty of time to get used to the new way of life.
- Finding humor in the situation when things go wrong can be helpful.
- It's important to find a comfortable routine and take a deep breath.
- Some individuals carry an extra of everything in an over-the-shoulder bag when going out.
- Using Lomotil before dinners out can help with comfort and reduce frequent bathroom visits.
- It's important to find a support system and wish others the best with their journey.
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