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41,406 members
Dec 09, 2023

Forgot it was there

This topic is about the experience of adjusting to life with an ostomy bag, particularly the moment when someone realizes they have momentarily forgotten about it while out shopping. This is a significant milestone in their recovery journey, happening just three weeks after surgery. Here are some insights and advice shared from this experience:

- Working with an ostomy nurse to find equipment that fits well and feels comfortable can make a big difference.
- Pushing yourself to get back to normal activities and stepping outside your comfort zone is important for progress.
- Having a strong support network and seeking therapy can be incredibly helpful.
- It's normal to occasionally wish things were different, but finding relief from years of pain and realizing that life continues can be empowering.

Some additional advice and insights include:

1. As healing progresses, many people find they forget about the bag, except when it becomes heavy or full.
2. Time is a great healer. Confidence, physical health, and mental strength tend to improve as the weeks and months go by.
3. Finding the right pouching system is crucial for comfort and peace of mind. It's beneficial to work closely with an ostomy nurse to try different products.
4. An ostomy can have practical benefits, like being able to "hold it" longer without the urgency to find a bathroom. Plus, the warm pouch can serve as a hand-warmer in winter.
5. It's a good idea to empty the bag before leaving home, especially when wearing multiple layers in winter, to avoid the hassle of undressing later.
6. Adopting an optimistic mindset and focusing on "getting busy living" rather than dwelling on the disease can be uplifting.
7. Humor, creativity, and community support, such as sharing poems, stories, and encouragement, can make the journey easier.
8. Staying connected with others is essential for happiness and long-term adjustment. Engaging with fellow ostomates can provide valuable support.
See full discusison
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