This topic is about someone who had a colostomy and a permanent rectal closure, often referred to as a "Barbie butt," after dealing with colorectal cancer. Five months after the surgery, they are experiencing discomfort, including a burning sensation and pressure in the area where the rectal opening used to be. They are seeking advice and wondering if others have had similar experiences. Here are some insights and advice that might be helpful:
1. The burning sensation and pressure could be due to neuropathic pain, which happens when nerves are disrupted. Many people have felt similar sensations, like "pins-and-needles" or burning, which often improve over time.
2. Nerve regeneration can take a different amount of time for everyone. Some nerves might not fully recover, and symptoms can be more noticeable at night. These sensations can last from 6 weeks to 6 months, or even longer in some cases.
3. There is a medication called gabapentin that might help reduce these neuropathic symptoms, although it won't completely fix the nerve damage. The effectiveness varies from person to person, and some people choose not to use it.
4. If the pain feels unusual, getting a CT scan might help rule out any structural issues.
5. It could be beneficial to consult a colorectal specialist or an experienced wound/ostomy nurse (WOCN) for managing postoperative symptoms. These professionals often handle day-to-day issues that surgeons might not address. A gastrointestinal (GI) specialist who is familiar with ostomy patients can also be a good resource.
6. Feeling uncomfortable while sitting is common for several months after surgery. Trying out different chairs, cushions, or sitting positions might help reduce numbness and pain.
7. Doctors might not always have personal experience with these symptoms, so connecting with peer communities or specialized clinicians can provide more practical advice and support.
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