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Jun 21, 2024

Living with Atonic Bowel - Considering a Stoma, Seeking Advice

This topic is about someone named Susan who has been dealing with severe bowel issues for years, which have left her mostly confined to her home. Her symptoms are similar to those of Irritable Bowel Syndrome (IBS), but tests have shown she has an atonic bowel, meaning her bowel isn't functioning properly. A specialist has suggested she consider getting a stoma, which is a surgical opening that allows waste to exit the body into a bag. Susan is unsure about this option and is looking for advice and insights.

Here are some helpful points to consider:

1. Many people have reported significant improvements in their quality of life after getting a stoma. They have been able to return to normal activities, travel, work, and enjoy time with family, free from the pain and social isolation they previously experienced.

2. Those who have had ileostomies often find that their lives are pain-free after the surgery.

3. Even with an ileostomy, the small bowel continues to absorb nutrients. The main change is a reduction in water absorption from the colon, and often only the problematic section of the bowel needs to be removed.

4. Deciding to get a stoma is a personal choice and can take time. Many people who have gone through with it wish they had made the decision sooner.

5. It's important to confirm the diagnosis of an atonic bowel and discuss the possibility of a temporary, reversible stoma. Not all surgeons have the same approach, so getting a second opinion can be valuable.

6. Choose a colorectal surgeon who is open to questions. Prepare a list of questions in advance, either written down or stored on your phone, and make sure you get answers both before and after the surgery.

7. People who have lived with bowel problems for many years before getting a stoma often come to see it as a positive change. They encourage others to consider it as a way to regain freedom and enjoy life, such as being able to travel and explore new places.
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