Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,427 members
Oct 02, 2024

Debating Parastomal Hernia Surgery: Seeking Advice

The topic at hand is about deciding whether to undergo elective surgery for a parastomal hernia repair or to adopt a watch-and-wait approach. The person sharing their experience has had an ileostomy since 2016 due to ulcerative colitis and developed a parastomal hernia in 2021. Although the hernia is large, it hasn't caused blockages, just occasional leaks that are manageable with a support belt or vest. They are considering whether to have a planned operation now or wait until an emergency situation arises. They are seeking advice from others who have faced similar decisions.

Here are some insights and advice shared by others:

1. Early recovery expectations:
- Some people report significant pain and fatigue 12 to 17 days after surgery, relying on pain relievers like Tylenol or Advil. An abdominal binder worn almost all day helps support the repair. They were able to return to desk work by day 5 but avoided lifting.
- It's common to experience little or no bowel output for up to 8 or 9 days post-surgery. Doctors often recommend Miralax if nothing passes by day 10, with a gradual return to normal bowel patterns by adding dietary fiber.

2. Elective vs. emergency timing:
- Many surgeons suggest waiting unless the hernia obstructs or the pouch cannot stay on, as the repair is major and recurrence is common.
- Some chose elective repair when blockages became frequent or wafer adhesion dropped to 1 or 2 days. They were pleased with the results, experiencing a flatter abdomen, no leaks, and no obstructions.
- One person, aged 78, had a planned laparoscopic Sugarbaker mesh repair, stayed in the hospital for 3 days, and was able to go on a Caribbean cruise 9 weeks later.

3. Surgical methods and durability:
- Mesh repairs, whether open or laparoscopic Sugarbaker, are preferred over simple stitching, as stitching alone often fails.
- A combination of layered suture and mesh reinforcement is used to reduce recurrence, but one person's repair still failed within months and is being reassessed.
- Surgeons emphasize lifelong precautions, such as wearing an abdominal binder early on and permanently avoiding lifting over 25 pounds or pushing heavy furniture to minimize recurrence.

4. Quality-of-life trade-offs:
- Positive outcomes include the elimination of blockages, improved pouch adhesion, a flatter abdomen, and a sense of regained normality.
- Risks and negatives involve major surgery, post-op pain, the possibility of recurrence even with mesh, and the need for strict activity limits.

5. Helpful products and aids mentioned:
- An abdominal binder for post-op support.
- Over-the-counter pain relievers like Tylenol (acetaminophen) and Advil (ibuprofen).
- Miralax (polyethylene glycol) to stimulate post-op bowel activity.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,427 members.

“I mostly read and still feel like I belong.”

“Doctors took notes; they want others to find this website.”

“From midnight blowouts to big wins, there’s always a hand to hold.”

Join Free

Popular Topics

Shiny Skin and Rash Issues with Ostomy Products
DEEP POCKET CELEBS
2 years
Newbie
Ostomy Products Pricing
Iron and B12 Deficiency with an Ileostomy
EAT HEARTY
Ileostomy Reversal
Hello
Travel Tips for Ostomates Visiting Switzerland

New Topics

Time flies *
B. Withers - Be Kind 67
Hydration tablets and fatigue
Canadian Disability Tax Credit
Fiber Intake with GLP-1s and Ileostomy Concerns
B. Withers - Be Kind 151
Spinal Surgery Update!!
Yeast Infections After Ileostomy: Seeking Advice and Prevention Tips
Positive outcomes
DECISIONS, DECISIONS
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑