The topic at hand is about deciding whether to undergo elective surgery for a parastomal hernia repair or to adopt a watch-and-wait approach. The person sharing their experience has had an ileostomy since 2016 due to ulcerative colitis and developed a parastomal hernia in 2021. Although the hernia is large, it hasn't caused blockages, just occasional leaks that are manageable with a support belt or vest. They are considering whether to have a planned operation now or wait until an emergency situation arises. They are seeking advice from others who have faced similar decisions.
Here are some insights and advice shared by others:
1. Early recovery expectations:
- Some people report significant pain and fatigue 12 to 17 days after surgery, relying on pain relievers like Tylenol or Advil. An abdominal binder worn almost all day helps support the repair. They were able to return to desk work by day 5 but avoided lifting.
- It's common to experience little or no bowel output for up to 8 or 9 days post-surgery. Doctors often recommend Miralax if nothing passes by day 10, with a gradual return to normal bowel patterns by adding dietary fiber.
2. Elective vs. emergency timing:
- Many surgeons suggest waiting unless the hernia obstructs or the pouch cannot stay on, as the repair is major and recurrence is common.
- Some chose elective repair when blockages became frequent or wafer adhesion dropped to 1 or 2 days. They were pleased with the results, experiencing a flatter abdomen, no leaks, and no obstructions.
- One person, aged 78, had a planned laparoscopic Sugarbaker mesh repair, stayed in the hospital for 3 days, and was able to go on a Caribbean cruise 9 weeks later.
3. Surgical methods and durability:
- Mesh repairs, whether open or laparoscopic Sugarbaker, are preferred over simple stitching, as stitching alone often fails.
- A combination of layered suture and mesh reinforcement is used to reduce recurrence, but one person's repair still failed within months and is being reassessed.
- Surgeons emphasize lifelong precautions, such as wearing an abdominal binder early on and permanently avoiding lifting over 25 pounds or pushing heavy furniture to minimize recurrence.
4. Quality-of-life trade-offs:
- Positive outcomes include the elimination of blockages, improved pouch adhesion, a flatter abdomen, and a sense of regained normality.
- Risks and negatives involve major surgery, post-op pain, the possibility of recurrence even with mesh, and the need for strict activity limits.
5. Helpful products and aids mentioned:
- An abdominal binder for post-op support.
- Over-the-counter pain relievers like Tylenol (acetaminophen) and Advil (ibuprofen).
- Miralax (polyethylene glycol) to stimulate post-op bowel activity.
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