This topic is about someone who, after being diagnosed with stage-1 colon cancer and Lynch Syndrome, underwent a total colectomy with ileorectal anastomosis and a full hysterectomy. They are now considering an ileostomy due to ongoing issues with watery accidents and rectal muscle dysfunction. They have several questions about what to expect with this change, including concerns about digestion, recovery, and whether to keep the rectal stump or opt for complete removal, known as "Barbie Butt" surgery.
Here are some insights and advice shared by others who have been through similar experiences:
1. General life-quality improvement with an ileostomy:
- Many people with muscle-related incontinence find that an ileostomy gives them back control and significantly improves their daily life.
2. Output consistency and management:
- Expect the output to remain loose or watery, as this is normal without a colon.
- You can thicken the output by adjusting your diet, such as incorporating soluble fiber and starches. It may take some experimentation to find what works best for you.
- Focus on nutrient-dense foods since the absorption time is shorter.
3. Deciding between keeping the rectal stump or opting for "Barbie Butt" surgery:
- Keeping the rectum usually results in occasional mucus discharge, which many find manageable.
- "Barbie Butt" surgery eliminates mucus issues and reduces future rectal cancer risk but involves a larger wound that can be slow or painful to heal. Some people may need hyperbaric oxygen therapy.
- Healing experiences vary widely; some people report little to no pain, while others experience discomfort when sitting for up to six months. It's important to discuss your individual risk factors with your surgeon.
4. Hospital stay and recovery:
- The length of the hospital stay can vary greatly, from under two weeks to longer, depending on how quickly you heal, any complications, and how fast you regain strength.
- Using a waffle pillow and having patience during recovery are commonly recommended as helpful strategies.
These insights are based on personal experiences and may help guide your decision-making process.
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