Living with a temporary loop ileostomy can be a unique journey, especially when it's meant to help heal perianal Crohn’s fistulas. This involves diverting stool away from the affected area to give it a chance to recover. If you're navigating this experience, here are some insights and advice from others who have been in similar situations:

- The ileostomy is usually intended to be temporary, but sometimes it's uncertain if reversal will be possible. It's important to have open discussions with your healthcare team about your specific situation.

- If you have fistulas, like the three perianal ones mentioned, each with a seton in place, it's helpful to understand that there are different types of fistulas. These can include enterocutaneous or entero-urinary fistulas, and the type you have can affect both the surgical approach and the healing process.

- Some people have experienced additional complications, such as developing small-bowel or urinary fistulas after surgery. This can lead to living with more stomas and other medical devices like an accordion drain. It's worth noting that surgeons might be cautious about performing further surgeries once fistulas have formed, as additional operations can sometimes lead to new issues.

- There are different surgical configurations, such as a "double-barrel ileostomy," which involves two stomas. Understanding the specific setup you have or might need can be beneficial. It can help you compare experiences with others and find the best solutions for appliance fit and other practical concerns.