Living with a Loop Ileostomy for Crohn's Disease Healing

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4
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214
AL77
Nov 15, 2024 1:13 am

Does anyone have a loop ileostomy? I have fistulas along with perianal Crohn’s Disease and had to have a loop ileostomy created so it can heal. 

Is there anyone else going through this?

AL77
Nov 15, 2024 1:40 am

Mine is supposed to be temporary too. My surgeon doesn’t know right now if it will be reversed.

IGGIE
Nov 15, 2024 12:55 pm

What is a double barrel ileostomy with two stomas ?

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SusanT
Nov 15, 2024 6:13 pm

Hi AJR77,

I don't have an ileostomy but I am currently struggling to heal a small bowel fistula and we have recently learned I also have a urine fistula too. Since surgery lead to my fistulas they are reluctant to operate again. So in addition to 2 new stomas, I came home with an accordion drain to keep the drainage out of my pelvis. 

What kind of fistulas do you have? I think there are several types. 

AL77
Nov 15, 2024 7:57 pm

I have 3 fistulas in the perianal area caused by Crohn’s disease. I had 3 setons placed there a few months ago. I had to have my jpouch disconnected and a loop illeostomy created to rest and heal rectal area.

 

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