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Nov 24, 2024

Immediate Help Needed for Painful Ostomy Site

This topic is about someone who recently had ileostomy surgery and is experiencing pain and sizing issues with their ostomy appliance after being discharged from the hospital. They are trying to figure out the best way to manage their situation until their next appointment with an ostomy nurse. Here are some helpful insights and advice shared by others who have been through similar experiences:

- Wafer Opening Size & Gap
- Cut the hole in the wafer as close to the stoma as possible without it being too tight. A small gap or none at all is often recommended.
- Measure the stoma size with each change for the first six weeks, as it can expand and contract.
- If the stoma swells, consider increasing the opening to 1-1/4 inches; otherwise, stick with 1-1/8 inches.
- A tight barrier ring can cause pain, so it might be helpful to loosen or remove it.

- Barriers, Rings & Products
- Moldable barrier rings, like Coloplast Brava, can be very helpful. Cut the wafer about 1/4 inch larger, stretch the ring to fit snugly against the stoma, and then apply the wafer.
- Some people use a second ring on top of the wafer for a better seal if the stoma protrudes significantly.
- Pre-cut wafers are available from companies like ConvaTec and Coloplast, but it's best to wait until the stoma size stabilizes.
- Keep a measuring template handy; most suppliers provide one or can send extras.

- Changing Technique & Timing
- The first solo change can take up to an hour, but with practice, it usually takes about 10-15 minutes.
- Write down the date, time, and method used on the pouch or saved backing to track what works best and use it as a cutting template.
- Change the appliance when the stoma is least active to minimize mess.

- Drainable vs. Closed Pouches
- Ileostomy output is frequent, about 10-12 times a day, making closed bags impractical and costly.
- Frequent changes can stress the skin around the stoma due to repeated adhesive removal.

- Filter & Bag Issues
- SenSura Mio filters can clog, and covering or damaging the filter may stop venting and cause pancaking.
- Blowing a little air into the bag before applying it can help prevent output from sticking around the stoma.
- A few drops of ostomy lubricating or deodorizing liquid inside the pouch can also help reduce sticking and odor.

- Rinsing the Pouch
- Some people rinse with water, but others find it breaks down the barrier ring and causes leaks. If rinsing shortens wear time, it might be best to avoid it.

- Record-Keeping & Supplies
- Keep written records of wear time, methods used, and any problems to identify what works best.
- Always have plenty of spare supplies on hand. Major manufacturers like Coloplast, ConvaTec, and Hollister offer free samples and have nurses available by phone.

- General Encouragement
- Pain usually resolves once the wafer fits correctly; discomfort is a sign that something needs adjustment.
- Skills and confidence improve quickly with practice. Remember, "slow and steady," "you've got this," and "it does get easier.
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