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Nov 25, 2024

J-Pouch Disconnection and Reconnection Experiences

This topic is about living with a temporarily disconnected J-pouch and the concerns about whether inflammation might return after it is reconnected. The discussion includes experiences and advice from people who have been through similar situations.

- Some individuals have opted to keep their J-pouch disconnected permanently and have returned to using a conventional ileostomy. They find life easier this way and prefer not to go back to using the pouch.

- It is common to experience rectal mucus after the pouch is diverted, but it usually does not cause any issues.

- One person has lived with a diverted pouch for 8 years. Their surgeon is hesitant to remove it, and regular check-ups, including colonoscopies, have shown no need for removal so far. This person had lingering inflammation after the diversion, which resolved within 6 to 7 months.

- Another perspective suggests removing the pouch entirely and closing the area to prevent future problems.

- Overall, experiences indicate that:
1. A disconnected pouch can remain in place for a long time if it is regularly monitored.
2. Some surgeons prefer not to remove the pouch unless there are complications.
3. Any remaining inflammation may decrease over time after the pouch is diverted.
4. Decisions about whether to reconnect, keep the pouch diverted, or remove it entirely are often based on personal quality-of-life considerations.
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