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41,404 members
Dec 04, 2024

Meeting other ostomates

This topic is about a 33-year-old who recently had surgery for stage-1 colorectal cancer and now has a permanent colostomy. While they are starting to accept this new reality, adjusting to life with a colostomy is still challenging. They are looking to connect with others who have similar experiences for friendship, encouragement, and positive insights to help them cope.

Here are some helpful pieces of advice and insights shared by others:

1. Community support is abundant. Feel free to ask any question, as nothing is off-limits. There will always be someone ready to share their personal experience or offer an informed opinion.

2. You are not alone. Many people in the community are also recent cancer survivors or have been living with an ostomy for a long time. They find comfort in talking with others who understand and are open to discussing all aspects of life with an ostomy.

3. Healing takes time. Recovery from colorectal surgery can take up to a year. It's important to be patient and continue with any recommended rehabilitation.

4. Long-term perspective. A 92-year-old member who has lived with a colostomy for decades emphasizes the importance of gratitude for life. They assure that managing the appliance becomes routine over time.

5. Set realistic expectations. Life with an ostomy isn't perfect. Issues like odor or appliance leaks can happen, but most problems can be managed with the right techniques and shared tips from others.

6. Emotional encouragement is key. Remember to celebrate your survival, stay connected with others, and reach out whenever you need support or practical advice.
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