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Jan 26, 2025

Anxious About My Upcoming Ostomy Reversal Surgery

The topic is about someone feeling anxious about their upcoming ostomy reversal surgery. They had a loop ileostomy due to undiagnosed Hirschsprung Disease, which caused significant issues with their colon. Although the reversal was planned, the thought of surgery brings anxiety, especially the fear of returning to previous health problems. They are seeking advice from others who have undergone similar procedures.

Here are some helpful insights and advice:

- Have an open conversation with your colorectal surgeon, and if possible, consult a second surgeon. Discuss:
1. The condition of your colon segments and whether any diseased parts were removed.
2. Any existing hernias, other health conditions, or high ASA scores, as these can affect the success of the surgery.
3. Alternatives like a J-Pouch if most of the colon is gone, and the potential for high stool frequency and skin irritation.

- Experiences from others vary:
1. Some had smooth reversals and are pleased with the outcome.
2. Others faced severe diarrhea, obstructions, or needed to return to an ileostomy.
3. Some chose not to reverse to avoid further surgery or incontinence risks.

- Data from studies show:
1. A complication rate of about 23% for reversals, with surgical-site infections at 9%.
2. Reversals after 4.6 months had higher complication odds.
3. Younger patients with fewer health issues had better outcomes.
4. Loop ileostomies are more likely to be reversed than sigmoid colostomies.

- Consider these quality-of-life questions:
1. Have a detailed discussion with your surgeons.
2. Review published outcome data.
3. Reflect on how well your original surgery and healing went.
4. Consider how easy your current stoma management is.
5. Seek input from close family or partners.

- For those who keep their stoma:
1. A colostomy or ileostomy can be manageable, with routines like emptying the pouch 5-7 times daily and changing the appliance twice a week.
2. Consider using 2-piece systems for easier changes. There are recommended products and accessories, with free samples available from brands like Coloplast, ConvaTec, Hollister, and Marlen.
3. Eating binding foods like bananas can help thicken output and extend the wear time of the barrier.

- It's normal to feel scared before surgery. Focusing on potential positives, gathering information, and considering personal lifestyle priorities can aid in making a decision.
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