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Mar 30, 2025

SIBO and Ileostomy: Tips and Advice Needed

This topic is about managing Small Intestinal Bacterial Overgrowth (SIBO) after having ileostomy surgery. The person who started the discussion is dealing with symptoms like nausea, bloating, slowed digestion, and poor nutrient absorption. They were prescribed antibiotics, but recovery might take a while, possibly up to 18 months. They are looking for advice and experiences from others who have been through something similar.

Here are some insights and advice shared by others:

- The doctor explained that without a colon, the small intestine tries to rebuild its microbiome too quickly, causing bacterial overgrowth and blocking nutrient absorption.
- The diagnosis was confirmed through a biopsy rather than the usual hydrogen/methane breath test.
- Symptoms improved during antibiotic treatment but returned afterward.
- The person plans to start a low-FODMAP diet and is seeking ways to speed up recovery, foods or activities to avoid, and tips that have worked for others with an ileostomy.

Advice and insights from others include:

1. Diagnosis and Testing:
- Breath tests are standard for diagnosing SIBO, but results can be affected by an ileostomy.
- An endoscopic biopsy can help identify SIBO or other infections like H. pylori.

2. Pharmaceutical Treatments:
- Rifaximin is a common prescription, though it works for some and not others.
- "Triple therapy" or combinations like amoxicillin, rifabutin, and Prilosec may be needed for coexisting conditions.
- Multiple antibiotic rounds can disrupt beneficial bacteria, leading to gas, bloating, or weight loss.
- Full recovery might take up to 18 months, with periodic antibiotic courses sometimes necessary.

3. Diet Strategies:
- A low-FODMAP diet is often recommended, though results vary.
- Temporarily avoid whole grains and high-roughage foods; opt for easily digested "white" starches like white bread.
- Track individual trigger foods, as what helps one person may not help another.

4. Functional and Complementary Options:
- Herbal antimicrobials like Candibactin-AR and Candibactin-BR have been effective for some.
- Biocidin, along with digestive enzymes, was used to manage bacterial overgrowth when pharmaceuticals didn't work.
- Repeated or cycling courses of herbal treatments may be necessary, but watch for contraindications.

5. Practical Symptom Management:
- Gas and "ballooning" of the pouch, especially at night, are common; dietary changes or gas-reducing supplements might help.
- Significant weight loss can occur; working with a dietitian can help maximize nutrient intake on restricted diets.

6. Learning Resources:
- A book by Dr. Mark Pimentel offers comprehensive guidance on medical and dietary management of SIBO.
- Online communities provide anecdotal experiences, updated protocols, and brand recommendations.

7. General Takeaways:
- Expect some trial and error; what works for one person may not work for another.
- Combine doctor guidance with personal tracking of foods, symptoms, and treatments to create a personalized plan.
See full discusison
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