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Mar 30, 2025

SIBO and Ileostomy: Tips and Advice Needed

Topic Explanation
The discussion centers around managing Small Intestinal Bacterial Overgrowth (SIBO) in individuals with an ileostomy. The original poster was recently diagnosed with SIBO and is seeking advice and tips from others who have experienced this condition alongside having an ileostomy.

Advice and Insights

1. Understanding SIBO with Ileostomy:
- SIBO occurs when the small intestines have an overgrowth of bacteria, which can lead to symptoms like nausea, bloating, and nutrient absorption issues. This can be particularly challenging for those with an ileostomy, as the microbiome in the colon is absent, and the small intestines are compensating by overproducing bacteria.

2. Medical Treatment:
- Antibiotics are commonly prescribed to manage SIBO, though recovery can take a long time, sometimes up to 18 months.
- A combination of antibiotics such as Amoxicillin, Rifabutin, and Prilosec has been used successfully in some cases.
- Xifaxan is another antibiotic that may be prescribed, though it may not be effective for everyone.

3. Dietary Adjustments:
- A low FODMAP diet is often recommended, although its effectiveness can vary.
- Avoiding whole grains, whole wheat, and roughage is suggested, with a focus on consuming white bread and other easily digestible foods.

4. Alternative Approaches:
- Consulting a functional medicine doctor for additional testing and treatment options, such as antimicrobials like Biocidin and natural gut barriers, can be beneficial.
- Reading resources like Dr. Mark Pimentel's book on SIBO for further insights.

5. Testing and Diagnosis:
- The breath test is a common method for diagnosing SIBO, though it may not always be accurate.
- Some individuals are diagnosed via biopsy instead of the breath test.

6. Community Support and Resources:
- Engaging with online forums and communities, such as Reddit or Quora, can provide additional support and shared experiences from others dealing with SIBO.
- Sharing personal experiences and treatment outcomes can be comforting and informative for those newly diagnosed.
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