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Apr 02, 2025

Colonoscopy Tips and Lessons Learned with a Stoma

This topic is about preparing for and undergoing a colonoscopy for those who have an ileostomy and a urostomy. Here are some helpful tips and insights shared by someone who recently went through this experience:

1. When preparing for a colonoscopy, using a closed-end pouch can be impractical. It's important to use a drainable bag. One person tried a new Coloplast drainable pouch but found it difficult to manage, leading to spillage.

2. It's a good idea to practice with any new appliance well before the day of your prep. After some trial and error, a routine was developed: remove the outlet pocket feature, undo all Velcro beforehand, and empty the pouch into a large cup while controlling the outlet.

3. Always bring at least one spare pouch to the hospital. It's helpful to carry extras and unlock any mechanical locks on the pouch before anesthesia to prevent damage.

4. The colonoscopy itself, when directed at the stoma, was painless. Any discomfort afterward was mainly due to gas.

5. If a rectal stump is also being scoped, there might be slight bleeding and soreness. Bringing a sanitary pad for comfort is recommended.

6. During the procedure, two large polyps were removed, and it was discovered that staples in the rectal stump had come undone, exposing pelvic mesh. A follow-up with a colorectal surgeon is planned.

Additional advice and insights from others include:

- Using a drainable pouch and practicing emptying it can significantly reduce stress. Confidence grows with repetition.
- It's important to find a drainable system that suits your personal needs, especially if you have conditions like neuropathy or arthritis. This might mean trying different brands and outlet styles.
- Remember, removing polyps early is a positive step, and being well-prepared can make future colonoscopies less intimidating.
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