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41,452 members
Jun 17, 2025

Surgical Review Update and Next Steps

This topic is about a person who is dealing with a very small stoma, which has become a concern for their medical team. The stoma is so small that the surgeon couldn't examine it properly. Due to the person's declining nutritional health and weakness, the team is considering using a feeding tube to help them gain strength before any corrective surgery can take place. Although the person is anxious about these upcoming medical interventions, they understand that these steps are necessary to prevent further health issues and are grateful for the support from others in similar situations.

Here are some helpful insights and advice shared by others:

1. The person had previously raised concerns about the small size of their stoma, but these were not acknowledged by their healthcare providers until recently. No explanation has been given for why the stoma has shrunk.

2. A new appointment with a nutritionist has been scheduled, and the person hopes to restart a nutritional support plan that was beneficial in the past.

3. If surgery needs to be postponed due to malnutrition, consider temporary intravenous nutrition to help regain weight and strength. One person shared that this approach allowed them to undergo life-saving surgery after a month of receiving nutrition this way.

4. Discuss with the surgeon the possibility of enlarging the stoma during surgery by making a small cut to widen the opening.

5. While waiting for surgery, try these measures to manage output and stay hydrated:
- Eat mostly soups and easily digestible foods.
- Drink about 1 gallon (3.8 liters) of fluids each day.
- Use osmotic laxatives like Miralax if recommended by your healthcare team.
- Gentle abdominal massages can help keep things moving in the bowel.

6. Emotional support and persistence are important. Many people emphasize the importance of staying strong, trusting the medical plan, and continuing to voice concerns until they are addressed.
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