Topic Explanation:
The forum discussion is initiated by an individual living with an ileostomy on Long Island, New York, who is seeking friendship and support from others who can relate to their experiences. They mention struggling with high output and other common ostomy issues and express difficulty in connecting with members of a local support group. The individual is looking for someone to share experiences with and provide mutual support.
Advice and Insights:
1. Many participants emphasize the supportive nature of the online community, suggesting it as a valuable resource for advice and shared experiences.
2. Some members share their long-term experiences with ileostomies, offering to provide insights and support based on their personal journeys.
3. High-output bags are recommended by a member who experienced similar issues, suggesting they can help reduce nighttime blowouts.
4. A caregiver shares their experience with managing watery output and suggests trying a barrier ring with a spout to direct output into the pouch, which may help prevent skin damage.
5. Participants encourage reaching out for advice on various aspects of living with an ileostomy, including diet, exercise, and clothing.
6. The community is described as kind, helpful, and experienced, with members willing to share their knowledge and support.
7. Some members discuss the challenges of maintaining privacy about their condition in professional settings, while others express openness about their ileostomy experiences.
8. There is a mention of the cost associated with full membership on the site, with differing opinions on the necessity of paying for access to messaging features.
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