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Jul 27, 2025

Seeking Advice on Managing Ileostomy Challenges

This topic is about managing some of the challenges that come with having a second ileostomy, particularly when dealing with persistent output, leaks, and pouch inflammation. The person sharing their experience is 62 years old and has had their current stoma since 2023, following several abdominal surgeries. They also have a disconnected internal J-pouch that remains inflamed, causing discomfort and a strong urge to move their bowels, despite trying various medical therapies like Humira, Entyvio, and Stelara. Here are some pieces of advice and insights that might help:

1. Consider discussing with your healthcare provider the possibility of surgically removing the retained J-pouch. This could potentially eliminate the inflammation and the constant urge to evacuate.

2. Finding the right ostomy products can be a very personal journey. It might be helpful to request free samples from different ostomy supply manufacturers. Try out various wafers, barriers, and pouch styles to see which ones best control leaks and noise, especially with high-liquid output.
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