Hi, I'm 62 - my 2nd round with an ileostomy - once in '97 - reversal 6 months later - in and out of the hospital - many surgeries & hospital stays - back to ileostomy in 2023 - my inner pouch gets inflamed - I get the urge to move my bowels, which we all know cannot be done - it's very uncomfortable - I've been on everything from Humira to Entyvio - Stelara - nothing helps - I have wet liquid output, which causes leaks - the noise from my bag is very loud - help
Ostomy23
Jul 27, 2025 12:40 pm
Ben38
Jul 27, 2025 2:22 pm
Trial and error is the only way to find which products are right for us. Phone around and email all ostomy companies to get samples to try until you find which one is right for you.
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Posted by: h2893535
I’ve only been on this site a little bit, I hardly know how to navigate it, LOL! I just want to say that everyone seems so kind and supportive to each of the members and it’s not only helpful, it makes me happy that there really are so many nice people in this world that can sometimes feel so bleak and cold. I didn’t even know about this site until I found it by accident. I think the hospital staff should bring it to their patients’ attention. Thanks to all, even if you’re just listening!
IGGIE
Jul 27, 2025 4:26 pm
Are you saying they left your inner pouch in place after giving you an ileostomy? Why?
IGGIE
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Hollister
A convex ostomy skin barrier can help prevent output leakage and skin issues. Unfortunately, some misconceptions about convexity may keep people with ostomies from using it.
Learn about convexity and 4 myths surrounding it.
Learn about convexity and 4 myths surrounding it.
Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister
