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Aug 29, 2025

Considering Colostomy Reversal: Seeking Experiences and Advice

This topic is about a person who had an unexpected end-colostomy after a surgery called Hartmann’s procedure. They are now cancer-free but dealing with a painful hernia near the stoma. Their surgeon suggests that reversing the colostomy is possible, even though only 15% of their rectum remains. The person is worried about the risk of fecal incontinence, which could affect their active lifestyle, and is seeking advice from others who have faced similar decisions.

Here are some insights and advice shared by others:

- The decision to reverse a colostomy is very personal. It's important to weigh the current quality of life with a reliable stoma against the uncertainty of how things might be after reversal.

- Losing a significant portion of the rectum increases the risk of Low Anterior Resection Syndrome (LARS), which can include frequent bowel movements, urgency, incontinence, and a long adjustment period. With only 15% of the rectum left, severe LARS is likely.

- Fecal incontinence is a major risk that might not always be fully explained. It's wise to seek a second opinion from a colorectal specialist before making a decision.

- Some people who have tried reversal or lived without a stoma have chosen to return to having a stoma because it made life more predictable and manageable.

- If the current colostomy is working well, with no leaks and comfortable appliances, it might be better to keep it to avoid further surgery and potential complications.

- The removal of the sigmoid colon or most of the rectum can make normal bowel control difficult, as these parts are important for storage and absorption.

- Practical experiences shared by others include:
- One person experienced years of discomfort and incontinence after reversal and eventually returned to a stoma.
- Another person decided against reversal after understanding the role of the sigmoid colon.
- A member shared that even with medication and staying close to a bathroom, life was better with a pouch.

- It's important to gather all the facts, avoid making an emotional decision, and fully understand the potential surgical complications and lifestyle changes before proceeding.
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