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Oct 04, 2025

Waking Up with Stomach Ache Due to Stoma Bag

This topic is about someone experiencing a persistent ache in their stomach or pelvic area during the night, which only eases after they empty their ostomy bag. Despite trying to manage their food and drink intake in the evening, the issue continues. Here are some insights and advice shared by others:

1. The ache has been a problem for several months and is notably worse at night.
2. Interestingly, the pain sometimes occurs even when the pouch isn't full.
3. The pain is described as a constant ache in the pelvic area.
4. There is a concern that previous extensive cancer treatment might have damaged nerves, potentially causing the pain.

Advice and insights from others include:

1. Some suggest that the weight or pressure of the pouch might be causing the pain. Trying a lighter pouching system or emptying the pouch more frequently could help determine if this is the case.
2. While "phantom pain" related to nerve damage after surgery is a possibility, the pattern of pain described doesn't clearly match this. Keeping a record of when the pain occurs and discussing it with a surgeon or stoma nurse for a nerve-pain evaluation might be beneficial.
3. It's recommended to talk to medical professionals to determine if the pain is new or related to other nighttime factors. Bringing a detailed diary of symptoms to medical appointments can be very helpful.
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