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Nov 11, 2011

Weight Loss with an Ileostomy - Any Tips?

This topic is about a woman from Australia who has an ileostomy and is considering losing weight. She is concerned about how weight loss might affect her stoma and the fit of her ostomy appliance. Here are some insights and advice shared by others who have faced similar situations:

1. She plans to lose weight gradually to allow the skin around her stoma to adjust naturally.

2. She has started attending aqua-aerobics once a week and is considering adding more sessions and trying Aqua-Zumba.

3. General effects of weight change:
- Many people have lost significant weight, up to 40 pounds, without any issues. In fact, a flatter abdomen can make it easier to see and apply the appliance.
- One person has experienced losing and regaining over 100 pounds multiple times. The only adjustment needed was cutting a smaller hole in the flange as the stoma shrank slightly. The stoma's position remains unchanged because it is fixed internally.

4. Skin, stoma, and appliance fit:
- Loose skin around the abdomen is unlikely to affect the adhesion of the pouch.
- The stoma diameter may reduce, so it's important to re-measure periodically and adjust the barrier opening as needed.

5. Risks linked to weight gain (not loss):
- Rapid weight gain led one person to develop two large peristomal hernias. She is now on medication for nerve pain and warns that gaining weight, not losing it, posed problems.

6. Weight-loss methods and activity suggestions:
- Slow and steady weight loss is recommended to minimize excess skin.
- Aquatic exercises like aquafit, aqua-aerobics, and Aqua-Zumba are highly recommended as they improve fitness without putting stress on joints or the stoma area.
- Regular land-based exercise helped one person maintain weight after surgery in 1986. She regained weight when she became less active due to a degenerative spine condition.

7. Surgical weight-loss option cautions:
- One person underwent gastric sleeve surgery but did not lose weight. She believes the surgery was chosen for the surgeon's convenience and would not choose it again.

8. Terminology light-heartedness:
- Members humorously discuss finding a better word than "appliance," with suggestions like "Stoma Condo," which helps create camaraderie and reduce anxiety about the equipment.
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