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41,422 members
May 11, 2009

Newbie Seeking Advice on Medication and Lifestyle Changes

This topic is about a person dealing with ulcerative colitis and considering the possibility of an ileostomy or J-pouch surgery. They are also seeking advice on how these medical conditions might affect their daily life, including intimacy, sports, and other activities. Here are some insights and advice shared by others who have faced similar situations:

1. Concealing the pouch during intimacy:
- Consider using "Romance Originals" ostomy pouch covers from White Rose Collection, which fully cover and secure the bag. Some partners find them attractive.
- One-piece lingerie teddies with a snap crotch can hide the appliance. A caring partner will not be bothered by the pouch, and if they are, they might not be the right person for you.

2. Finding and keeping a partner:
- Acceptance varies, but the right person will be patient and understanding.
- Confidence and honesty are key. Many people eventually find partners who accept the ostomy, though it may take time.

3. Reversal / J-pouch experiences:
- Experiences with reversals can vary widely. Some have had poor results, while others report significant improvements in quality of life.
- It's important to remember that online forums may have more negative stories because those with successful outcomes are busy enjoying life.

4. Sports, swimming, and general activity:
- Many people with an ileostomy continue to play sports regularly, and there is generally nothing you can't do.
- Supportive garments or pouch covers can help keep the appliance secure during physical activities, including swimming.

5. Emotional perspective:
- Life with severe symptoms before surgery can be more challenging than life with an ostomy. Prioritizing health and comfort is important, and relationship worries should not overshadow this.
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