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Aug 15, 2012

Adjusting to Life with an Ileostomy Near Lincoln

This topic is about someone who has been living with an ileostomy for five months and is still adjusting to this new way of life. They are located near Lincoln and are looking to connect with others who have had similar experiences. Here are some insights and advice shared by others:

1. After the initial surgery to remove part of the bowel, a pouch was created but unfortunately leaked within a week, resulting in a lengthy hospital stay of nearly three months. The hospital in Lincoln plans to examine the pouch soon to see if it has healed enough to consider another surgery.

2. The person is understandably nervous about the upcoming anesthesia and the prospect of being examined without clothing. However, they are trying to maintain a positive outlook and find humor in the situation.

3. Adjustment takes time. Many people have mentioned that five months is still quite early in the process. It can take many months or even years before living with an ileostomy feels normal.

4. Staying positive and seeking support is important. Asking questions and engaging with others who have similar experiences can be very helpful. A positive attitude can aid in acceptance.

5. For better sleep, try using an extra pillow alongside your body to allow for semi-side sleeping without rolling fully onto the bag. You can also train yourself to sleep on your back or on the side opposite the stoma to help reduce leaks.

6. To manage night-time output, consider using "high-output" appliances from brands like Convatec or Hollister. These can hold a larger volume and may reduce the need to get up during the night.

7. Adopting a positive mindset can be beneficial. The phrase "Mind over matter—if you don’t mind, it doesn’t matter" was suggested as a mantra, and humor can help ease stress.

8. For local support, there are people in the Midlands, Nottingham area, Norfolk, and other parts of Lincolnshire who are willing to chat privately if more specific help or companionship is needed.
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