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Oct 12, 2012

Fear of Reversal Surgery - Need Advice!

The topic at hand is about the fear and considerations surrounding colostomy reversal and hernia-repair surgery, especially when there are extensive adhesions involved. The person in question has been living with a colostomy for over three years and is now facing surgery for hernia repair, with the possibility of reversing the colostomy. They are concerned about whether life without the ostomy will truly be better, given the freedom it has provided from ulcerative colitis symptoms. Here are some insights and advice shared by others who have faced similar situations:

1. You are not alone. Many people experience anxiety about returning to pre-ostomy bathroom habits after a reversal. It's a common concern among those considering this surgery.

2. Have a thorough discussion with your surgeon.
- Ask about potential outcomes, such as changes in bathroom frequency, the risk of new or recurrent hernias, and the possibility of needing further surgery.
- Clarify what options are available if the reversal is not successful or if symptoms return.

3. Understand that adhesions are internal scar tissue that can cause complications. Surgeons often try to cut these adhesions during hernia repair, which might help relieve pain and obstructions, regardless of whether the reversal is successful.

4. Consider the pros and cons of reversal:
- Pros: If successful, you may enjoy freedom from the ostomy bag. Since the surgeon will already be operating for hernia repair, attempting a reversal adds minimal additional risk.
- Cons: Some patients have experienced postoperative hernias or high stool frequency and later wished they had kept the colostomy. Be prepared for the possibility of needing to return to an ostomy in the future.

5. Medication considerations: One patient with Crohn’s disease was prescribed Imuran (azathioprine) after reversal to help maintain remission.

6. Research and resources:
- Explore the forum’s "Ostomy Reversal" section and read articles like "Before You Rush into the OR" for more information and personal experiences.

7. Seek emotional support:
- Joining a local or online ostomy support group can provide comfort, ease anxiety, and offer practical tips from those who have been through similar experiences.

8. General guidance from others suggests that since the abdomen will be opened for hernia repair, allowing the surgeon to attempt a reversal is reasonable. If it doesn’t work out, creating a new colostomy later is usually straightforward.
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