This topic is about a challenging experience someone had with a medical procedure involving their stoma, which is an opening created during surgery to allow waste to leave the body. The person had a difficult time with a colonoscopy that was not properly communicated or followed up by the medical team, leading to severe complications. Here are some insights and advice shared by others in similar situations:

1. Seek qualified help immediately:
- Find a Wound, Ostomy, and Continence Nurse (WOCN) clinic, even if you have to pay out of pocket. They are often more knowledgeable and compassionate than some doctors.
- Visit the emergency room at the hospital where your original surgery was performed. Insist on a specialist review and proper documentation.
- Consider changing your gastroenterologist and thoroughly research any future healthcare providers.

2. Appliance and product suggestions to protect the cut:
- Use a ConvaTec moldable no-cut flange, which is soft and can be adjusted to fit snugly around the stoma, removing the hard plastic edge.
- Stack two barrier rings to elevate the wafer and keep its edge away from the wound.
- Try Stomahesive or other pastes/rings, but be cautious if your output is very liquid.
- Keep extra wafers on hand and explore options for manufacturer samples or charitable supply banks if insurance is an issue.

3. Manage liquid output and skin integrity:
- Use fiber supplements like Metamucil to thicken ileostomy output if Imodium (loperamide) is not effective.
- Ensure you stay hydrated and maintain electrolyte balance when using bulking agents.
- Apply skin-protective creams or powders specifically designed for peristomal skin, avoiding standard diaper-rash ointments if they cause burning.

4. Address infection and systemic issues:
- Seek a referral to an Infectious Disease specialist for persistent infections, as long-term antibiotics can weaken your immune system.
- Work with an experienced gastroenterologist to manage conditions like H. pylori, gastritis, and Crohn’s/colitis, as uncontrolled inflammation can prevent stoma healing.

5. Legal and advocacy considerations:
- Document everything, including photos, timelines, and symptoms, as there may be grounds for a malpractice case due to negligence.
- Inform all healthcare providers that your case is being followed by a large online community, which can encourage better care.

6. Practical interim measures (shared personal ideas, not medical advice):
- Some have used medical-grade cyanoacrylate (like Dermabond or skin glue) to close minor stoma cuts in emergencies, but only under professional guidance.
- Remove your own flange before any future scope to prevent repeat injury.

7. Reassurance and community support:
- Feel free to express your frustrations; the community is there for mutual support. Members encourage persistence until you receive competent care.