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Mar 12, 2015

Switching from Ileal Conduit to Indiana Pouch - Experiences?

This topic is about someone considering a change in their urinary diversion method. They currently have an ileal-conduit urinary diversion, which involves using an external urostomy bag. A surgeon suggested they might switch to an Indiana Pouch, a type of continent cutaneous reservoir that doesn't require an external bag. The person is weighing the pros and cons of making this change.

Here are some insights and advice shared by others:

1. The person is currently dealing with some issues related to their external urostomy bag but is hesitant about undergoing another major surgery due to the risks and potential complications associated with the Indiana Pouch.

2. After discussing with their original surgeon, they learned about the long recovery time and possible complications of the Indiana Pouch, such as short-bowel syndrome, which can cause severe diarrhea and excess mucus. This information led them to decide to stick with their current ileal conduit for now.

3. One member shared their experience with an internal pouch, reporting severe discomfort and persistent issues:
- They experienced severe stinging and rawness after every bowel movement, making it very uncomfortable.
- They had ongoing mucus discharge from the disconnected pouch even after switching to a stoma.
- They have been satisfied with their ileal-conduit stoma for nine years, with skin issues only occurring with rare leaks.
- Based on their experience, they would not recommend an internal pouch and suggest that sometimes it's better to stay with what you know.
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