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Jul 27, 2015

Managing Work with a Colostomy - Experiences with Ill Health Retirement?

This topic is about managing the challenges of working with a colostomy, dealing with hernias, and maintaining emotional well-being. It also touches on the possibility of taking ill-health retirement due to these difficulties. Here's a summary of the advice and insights shared:

- The poster was struggling with managing a colostomy at work, especially after developing a fistula and having an uneven abdominal surface. This led to issues with wafer seals, odor, pancaking, and leaks. They found irrigation exhausting and were embarrassed by leaks during meetings, which affected their self-esteem. Despite support from a stoma nurse, they felt unable to continue working and eventually retired on medical grounds. After some medical procedures, they resumed irrigation, which helped manage their condition, although self-esteem issues remain a challenge.

- Experiences with returning to work or considering retirement vary. Some people continue working for many years, but those with physically demanding jobs, like heavy lifting, may face recurrent hernias. Surgeons can support disability claims if a lifestyle change is medically necessary.

- For those with uneven stoma surfaces, trying different products can help. This includes a variety of wafers, convex appliances, rings, pastes, or seals. Contacting manufacturers for free samples can be useful until finding a system that fits well.

- Managing leakage and odor involves dietary adjustments, using in-pouch deodorant drops or gels, chewable odor-control tablets, and toilet drops. Ensuring a good seal by cleaning the skin with non-oily, non-lotion soap before applying the appliance can also help.

- To prevent pancaking, in-pouch lubricants or a small amount of baby oil can help stool move to the bottom of the pouch. Molding a mound of paste or a ring around the stoma can create space.

- Irrigation can be a work-friendly option for those with a colostomy. Many find that irrigating once daily or every 48–72 hours provides predictable continence, which is important for jobs like teaching or managing. Tips include using body-temperature water to reduce cramps and being patient during the retraining period if outputs become irregular.

- Emotional support is crucial. Joining local or online ostomy support groups can help share practical tips and reduce feelings of isolation. Recognizing that psychological strain is common and seeking counseling or peer mentoring can help rebuild self-confidence.
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