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Sep 18, 2016

Need Info on Laparoscopic Ileostomy Pouch Form + Proctectomy/ Panproctocolectomy

This topic is about understanding a surgical procedure called laparoscopic ileostomy pouch formation with proctectomy or panproctocolectomy. This is a type of surgery often considered for individuals with conditions like ulcerative colitis, especially when complications such as low-grade dysplasia arise. The procedure involves removing the colon and rectum, creating a temporary ileostomy, and possibly connecting a pouch later on. Here are some insights and advice shared by others who have gone through similar experiences:

1. The surgery is performed using a keyhole technique and typically takes around 5.5 hours. Post-operative pain is usually minimal, though some experience significant back pain, which can be managed with medications like paracetamol, tramadol, and ibuprofen.

2. After surgery, patients are often discharged within a week, though they may feel very fatigued and could encounter minor issues like urinary infections.

3. It's important to remember that while negative stories are common in forums, many people have smooth recoveries and don't share their experiences online. Don't be discouraged by what you read.

4. If you come across medical terms you don't understand, look them up online before your appointments to have a clearer understanding.

5. Keep detailed notes of any medical advice you receive. Some patients find they are so satisfied with their stoma that they choose not to have a reversal.

6. Be prepared for a steep learning curve, but also know that many people experience a significantly improved quality of life after they have healed.

7. Post-operative fatigue, back discomfort, and minor infections are common but usually temporary. Healing takes time, so be patient with yourself.

8. Treat the operation as a new beginning and focus on taking things one day at a time. Strength and a sense of normality generally return after the stitches are removed.

9. Remember that there is a supportive community out there offering ongoing support, good thoughts, and prayers throughout your recovery journey.
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