This topic revolves around the challenges faced by someone who underwent emergency surgery resulting in an ileostomy, and who is also dealing with prostate cancer. Here’s a breakdown of the situation and some advice that might be helpful:
- The individual had a sudden and severe abdominal issue that required emergency surgery, leading to the removal of the colon and the creation of an ileostomy. This was followed by serious complications, including a cardiac arrest and a lengthy hospital stay. Unfortunately, the exact cause of the initial bowel problem remains unclear.
- Prior to this, the person was managing prostate cancer and had plans for radiation treatment, which had to be paused. Due to the surgery, their medication was changed, and their PSA levels increased significantly. Two urologists advised against prostate surgery due to the risks, suggesting a different procedure first, but the patient is hesitant.
- The patient is seeking information on how prostate radiation might affect someone with an ileostomy, as they have been unable to find relevant guidance.
- A radiation oncologist explained that prostate radiation could significantly increase the frequency of ileostomy pouch emptying and might cause permanent rectal damage, which would prevent any possibility of reversing the stoma. As an alternative, hormone therapy is being considered to manage the cancer for several years, with regular PSA monitoring.
- Scans have been ordered to check if the cancer has spread, as the PSA levels have doubled in a year.
- The patient experienced an emergency room visit due to nausea, lack of stoma output, and dehydration. A CT scan ruled out a major obstruction, and after receiving IV fluids, the stoma function returned. There is concern that this might be related to scar tissue.
Here are some pieces of advice and insights:
1. Engage with your surgeons and oncologists to get detailed explanations of their recommendations and ask for any medical literature on prostate radiation for ileostomy patients. This will help you understand the evidence and make informed decisions.
2. Share your experiences with the ostomy community, as your journey could provide valuable insights for others in similar situations.
3. Keep open lines of communication with your oncology team. It’s important to wait for the results of the CT and bone scans to understand the extent of the cancer before making further treatment decisions.
4. Be aware that temporary blockages in the ileostomy can happen. Quick hydration, imaging, and IV support, followed by careful oral intake, are typical responses and usually resolve the issue.
5. Seek multiple opinions and stay informed. Being proactive in your care is crucial, and the support from others can be encouraging during this challenging time.
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