This topic is about dealing with post-surgical stoma pain, which can be caused by inflammation, trapped gas, possible blockages, and hydration issues. Here are some insights and advice to help manage these challenges:
- After a recent CT scan, it was found that inflammation around the stoma is likely causing severe pain, rather than gallstones. Trapped gas might also be a factor. Since the surgery is still fresh, further operations are not recommended at this time.
- The surgeon left a significant length of the rectum, which means that a future reconnection without a J-pouch could be possible.
- It is advised to continue taking the irritable-bowel medication prescribed by the VA and to use ibuprofen only when absolutely necessary.
- Keep an eye on the color of the stoma for any signs of ischemic changes. If ischemia spreads to the small intestine, a new stoma might be needed.
- For now, the approach is to wait and see if the pain resolves on its own.
Additional observations and experiences include:
- On particularly painful days, there is a lot of rolling gas, and the current IBS medication offers little relief. Strong pain medications are avoided when possible.
- Pain cycles tend to occur every 2–3 weeks and last for several days.
- A visit to the ER revealed dehydration and a suspected food blockage from canned green beans. Symptoms improved after rehydration, and green beans are now avoided.
Some helpful advice and insights:
- Severe gas pain can be caused or worsened by a hernia that narrows the stoma opening. Using porous stoma plugs can help keep the opening clear and allow gas to escape gradually, reducing pressure build-up.
- Post-ileostomy cramping might be due to the bowel trying to "reconnect," ileus (a condition where air and bile are stagnant), or infections like kidney or urinary infections.
- Buscopan (hyoscine butylbromide) has been found to provide some relief for spasms, especially when opioids make the pain worse.
- Opioid pain relievers can increase cramping and should be used with caution.
- Dehydration and certain foods that are hard to digest or bulky, like canned green beans, can cause temporary blockages and severe pain. Staying well-hydrated and creating a personalized list of foods to avoid can help prevent these issues.
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