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Nov 15, 2017

Managing an Ileostomy in NYC - Tips for Finding Restrooms

This topic is about a young woman who is adjusting to life with a possible permanent ileostomy while living in New York City. She is concerned about the challenges of finding public restrooms in a city known for their scarcity, especially since an ileostomy often requires more frequent bathroom visits. She is seeking advice on how to manage this aspect of her life while still enjoying everything the city has to offer.

Here are some helpful tips and insights:

1. Restroom-locator technology:
- Download the "Got to Go" app or other restroom-finder apps by searching "restroom" in any app store.

2. Scout and plan ahead:
- Familiarize yourself with the locations of bathrooms in areas you visit often. Large department stores, supermarkets, gas stations, and some delis usually have restrooms.
- Public toilets are available at tourist sites like museums, concert halls, and parks, even if you don't pay admission.

3. Go-to NYC spots:
- Hotel lobbies, especially those of large or high-end chains, are reliable and usually cleaner. Conference-area restrooms are designed for public use.
- Places like Whole Foods (e.g., Columbus Circle), Eataly, and other food halls offer easy, anonymous access.
- Fast-food outlets like McDonald's and Starbucks, as well as delis, may require a purchase or door code. Buying a coffee can solve this issue.

4. Urgency/identification aids:
- Obtain an ostomy or medical "urgent need" card, such as the Dansac Travel/Access Card or Crohn’s & Colitis Foundation membership cards.
- In the UK, a RADAR key opens locked disabled toilets. In the U.S., showing a card may allow access to staff or "disabled" facilities.

5. Products that extend time between empties:
- Use Diamonds™ (charcoal-based gelling sachets) from Trio Healthcare to thicken liquid output and absorb odor/gas.
- Disposable pouch liners allow for quick removal and re-attachment of the main appliance when needed.

6. Practical habits:
- Empty the bag when it is no more than one-third full to avoid emergencies.
- Explore daytime versus nighttime options, as late-night areas may require heading to a 24-hour hotel lobby or large chain eatery.

7. General encouragement:
- Many people with long-term ileostomies find that with planning, living in NYC and traveling do not restrict their lifestyle. Don't let the ostomy stop you from sightseeing, dining out, or enjoying the nightlife.
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