This topic is about someone reflecting on their journey a year after undergoing an emergency colectomy, coinciding with St. Patrick’s Day. They share their experiences and express gratitude for the support they've received. Here are some key points and advice from their story:
1. The original poster had a rapid and aggressive case of ulcerative colitis, which led to an emergency colectomy. This surgery unexpectedly included a mucous fistula, which the surgeon did not initially disclose.
2. They spent eight challenging months living with an ileostomy before undergoing J-pouch surgery in November.
3. Despite severe physical and mental challenges, they managed to complete their first semester at university, although they are still working on rebuilding their confidence.
4. The support and wisdom from members of an online forum have been invaluable, providing emotional support that complemented what their family could offer.
5. Although their current semester is intense and limits their online activity, they make a point to check in, express gratitude, and wish everyone a happy St. Patrick’s Day.
Advice and insights shared by others include:
- One member shared their experience of undergoing a second emergency surgery due to nearly fatal colonic failure, severe stricture, and adhesions. They found that despite dramatic setbacks, re-operation led to improved function, highlighting that better outcomes can emerge over time.
- Both members emphasize the importance of patience in healing, as intestines can remain swollen and backed-up for months. Normalization is gradual, so maintaining hope and patience is crucial.
- Celebrating milestones, such as "stomaversaries" and surgery anniversaries, can help recognize progress and maintain a positive outlook.
- Small comforts, like ice chips when nil-by-mouth in the ICU, can feel lifesaving and serve as reminders of how far one has come.
- The value of community support is reaffirmed, with multiple replies emphasizing the importance of peer encouragement and checking in, especially during demanding life phases like university or immediate post-op recovery.
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