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Aug 31, 2018

Struggling with post-ileostomy fatigue, when will I feel better?

The topic at hand is about dealing with fatigue after having an ileostomy, especially for someone who has Crohn’s disease. This person is about 8 weeks post-surgery and is experiencing extreme tiredness, even more than before the surgery, making it hard to get out of bed and affecting their mood. They are wondering if this level of fatigue is normal and when they might start feeling better.

Here are some helpful insights and advice:

1. Recovery of energy after major abdominal surgery can take time. Many people find it takes anywhere from 3 to 6 months, or even longer, to feel back to normal.

2. If you were experiencing a flare-up or were malnourished before the surgery, your body is now healing from both the disease and the operation, which can add to the fatigue.

3. Be patient and gentle with yourself. It's normal to feel down or scared during the early stages of recovery. Connecting with others through online forums or peer support can help reduce feelings of loneliness.

4. Nutrition can play a big role in recovery:
- Try eating small, frequent meals and make sure to chew your food thoroughly.
- Consider high-protein oral supplements like Ensure or Boost to help replenish calories, vitamins, and protein. Many people enjoy the chocolate flavors.

5. Gentle activity can aid recovery. Start with regular, light walking, even if it's just around the house. This can help improve circulation, expand your lungs, and gradually build strength.

6. If you are on medications or considering ongoing treatment, like biologic therapy, discuss options with your healthcare team. For instance, some people start treatments like Humira to manage Crohn’s and prevent further surgeries.

7. It's important to distinguish between normal healing and warning signs. While persistent fatigue that slowly improves is typical, if your exhaustion worsens, your mobility is severely limited, or you experience other concerning symptoms, reach out to your surgeon or gastroenterologist.
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